Darwen sufferer of 'elephant man' condition raises money for Neuro Foundation

Damian Bradley suffers from a rare genetic condition

Damian Bradley suffers from a rare genetic condition

First published in East Lancashire Chorley Citizen: Photograph of the Author by , Reporter

AN East Lancashire man suffering from the same syndrome as the ‘Elephant Man’ has set his sights on a charity bike ride this summer.

Damian Bradley, 31, from Darwen, was born with neurofibromatosis, a rare genetic condition caused by a mutant gene which varies from person to person and limits physical abilities.

He suffers from similar difficulties to those thought to have ravaged Joseph Merrick, born in Leicester in 1862, who had severe deformities and was exhibited as a human curiosity named the ‘Elephant Man’.

Damian, who is currently studying for his English and maths GCSEs at Blackburn College, also suffers from Carpal Tunnel Syndrome, has a hole in his heart, a tumour pressing on his spine and has had three heart attacks.

Now, despite his health problems, Damian is organising a bike ride on exercise machines in aid of the Neuro Foundation which helps support people suffering from neurofibromatosis.

He is appealing for volunteers to help him complete the 669-mile distance which is equivalent to riding from John O’Groats to Lands End.

Damian, who has had to take a range of medications all his life, said: “I’m held together by sticking plaster and I know that it will cause me a lot of pain but it’s something that I’m determined to complete.

“I’ve always wanted to do something for charity and I’ve previously tried to enter the London Marathon but my doctor advised against it.

“I want to raise at least £1,000 and I know that I can’t do it on my own so I’m appealing for volunteers to help me.

“I think they whole challenge could take about two days and It would be amazing to complete this.

“I want to be proud of something and this is a great opportunity for me.”

For more information or to donate to Damian’s challenge, visit www.justgiving.com/damianbradleynf82

Comments (3)

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10:21pm Tue 1 Apr 14

Helsbels1801 says...

Hi I live in Darwen and have a 14yr old daughter who has neurofibromatosis type 2 x
Hi I live in Darwen and have a 14yr old daughter who has neurofibromatosis type 2 x Helsbels1801
  • Score: 2

10:59pm Tue 1 Apr 14

williamJAF says...

My name is William and I work with an NF advocacy group called Just Ask! Foundation. First off, kudos to Damian for rising to the challenges life laid out for him. Keep up the good work! Second, kudos to you, Mr. Robinson, for helping to publicize this misunderstood condition, which brings me to my third point: neurofibromatosis is not the same syndrome that John Merrick (the elephant Man) suffered from. He suffered from a completely different condition, called Proteus Syndrome. And neurofibromatosis type 1 is not that rare of a condition. In fact, it is the most common neurological disorder caused by a single gene.
You can learn more about neurofibromatosis here: http://www.justaskfo
undation.org/blog/wh
at-is-neurofibromato
sis/
and you can also see some of the advocacy work our founder, Reggie Bibbs, engages in to help educate both those with and without NF.
Once again, thank you for keeping the discussion going, and good luck to Damian!
My name is William and I work with an NF advocacy group called Just Ask! Foundation. First off, kudos to Damian for rising to the challenges life laid out for him. Keep up the good work! Second, kudos to you, Mr. Robinson, for helping to publicize this misunderstood condition, which brings me to my third point: neurofibromatosis is not the same syndrome that John Merrick (the elephant Man) suffered from. He suffered from a completely different condition, called Proteus Syndrome. And neurofibromatosis type 1 is not that rare of a condition. In fact, it is the most common neurological disorder caused by a single gene. You can learn more about neurofibromatosis here: http://www.justaskfo undation.org/blog/wh at-is-neurofibromato sis/ and you can also see some of the advocacy work our founder, Reggie Bibbs, engages in to help educate both those with and without NF. Once again, thank you for keeping the discussion going, and good luck to Damian! williamJAF
  • Score: 3

10:58pm Wed 9 Apr 14

damcom82 says...

Helsbels1801 wrote:
Hi I live in Darwen and have a 14yr old daughter who has neurofibromatosis type 2 x
Hello helsbels. Im Damian as story above I also live in Darwen and suffer from NF2. Would you plz share the story and feel free to add me on facebook. If you wanna maybe help out and do summat when i do the event I can add you to my list.
[quote][p][bold]Helsbels1801[/bold] wrote: Hi I live in Darwen and have a 14yr old daughter who has neurofibromatosis type 2 x[/p][/quote]Hello helsbels. Im Damian as story above I also live in Darwen and suffer from NF2. Would you plz share the story and feel free to add me on facebook. If you wanna maybe help out and do summat when i do the event I can add you to my list. damcom82
  • Score: 0

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